Update 11/08/11: Celeste is doing great! Last week she gained some weight (just a tiny bit) We’d like to avoid her having to have an NG tube so we kept telling her to think heavy thoughts during her weekely weigh-in at clinic. We finally got the details from her MRI – Her tumour has shrunk a total of 91% up from 84% in June! Just a little more to go! She had a great weekend visiting with our friends the Becketts. Cory and Hannah spent the whole day with us. She is feeling stronger and walking up and down stairs much better than a month ago. We are hoping for the removal of her central line at the end of November. 3 more weeks to go. Thanks everyone for all your continued prayers. We are so very thankful.
If you have a moment to spare a prayer for my Niece who is at Sick Kids in Toronto undergoing Chemo and other unpleasantries to cure her of some remaining pineal blastomas. Here is some background information from my sister, Laura. This is somewhat outdated. If you’d like to join the facebook group, it is here http://www.facebook.com/groups/214424228589185 There is a video at the bottom of the post that will help you to visualize what needs to be done, however you ‘pray’. Laura: Celeste was admitted to hospital in London Ontario,Thursday Feb 24th after experiencing headaches, nausea and double vision. After a CT scan and MRI, she underwent an emergency surgery for Hydrocephalus caused by a tumour in her brain near her pineal gland. She was transfered to Toronto Sick kids on the Saturday and underwent a second surgery to do a biopsy a week after the first surgery. The following week we were given a diagnosis of Pineoblastoma – a malignant brain tumour near the pineo gland which has metastases (small tumours that have spread to her brain stem and spinal cord). Celeste underwent 6 weeks of high intensity Radiation starting Apr 11th and she just had her last treatment yesterday May 25th. 30 treatments in total. She has been the bravest girl ever. While the first week was difficult, she has done extremely well in the 5 weeks since with hardly any side effects. She was able to continue to attend school. She bought 2 wigs, shaved her head and enjoyed alternating between being a blond and a brunette! There have been various test and procedures to endure but she has just trooped along through them all. We are so proud of her attitude and courage in dealing with everything. She will have a few more procedures over the next 6 weeks then is scheduled to start Chemo on July 7th.